I am a little worried well sorry guys you know me i am a lot worried,
I got a phone call from dans nurse yesterday and she said is it easier for you to have bloods done at wigan for daniel i said yeah but he still wants to be underalderhay as he feels safe there adn they saidno worries but he can have his bloods in wigan i said ok but why now she said he about ready to have them done again and i thought oh ok but deep down i thought he has them when he goes every 3 months so why he ready but she seemed ok so i never bothered untill i got home bit ago to a letter tipical now hospital clossed for nurse. the letter is one which they send everymonth but it says alt raised at 107 and ast 72 and on the back it says needs lft shortly as last ones were abnormal, i am really worried and i know i wont sleep now, dose any one know what this means.

Oh, Tina, you must be worried sick. I know it's easy to say, but try not to worry too much, if it had been anything really, really serious they would be doing something about it already, not just taking more blood. I don't know anything about it really, so I'm no help, but I'm sure someone on here will be able to give you some comforting words. I just don't like to think of you being so worried, but I can't blame you, I know I'd be the same

Anthea x

Hi Tina

First of all - DON'T PANIC! Dan is on methotrexate and this can, from time to time, affect the liver levels. It has happened to me several times, and I think lots of people on mtx experience this from time to time. Although his levels are raised, they are not desperately high.

I'm not a doc, so can't advise, but I do think you need to speak to Dan's consultant tomorrow and ask if he should come off the mtx for the time being until the levels go back to normal. The good thing is that when people come off the mtx, the liver usually puts itself right very quickly and then you can start on the meds again. If you can't get an sense out of anyone, ring the NRAS helpline. I feel that you will be told to stop the meds until his next blood test and then see how things are. It really is vitally important you get some advice on this.

I know it's easy for me to say don't panic, but as it's happened to me several times, I know how these levels can go up and down very quickly.

Lots of love
Jeanxxxxxx

Was that test 3 months ago Tina?
It's quite possible that it has gone down by now but you are right to want it checking as soon as possible.
I have mine done at the GPs surgery which means that the GP checks them as well as the rheumy team.

Doreen xx

all best speaking to them tomorow,mine went up couple times on mtx it came down in couple month what they did was re do bloods no damage done.had gone down again quite quickly.

try not worry hun,ring and ask advice.
they all vary at what level they stop the drugs,mine said over 150 would stop.
best not look it up online often incorrect and scares us adding unneeded stress.hugs
melly

I have been in touch with nurse and as it a one off with him she thinks it could just be a case of he had an infection i did tell her he has been unwell but ok now and she said it probs that but bring him next week and we will let you know soon as.